Yes, that's my sweet Little...with a pink bubble wand in his mouth. He loves bubbles, and they kept him occupied as he waited for his medical appointments at Cincinnati Children's Medical Center yesterday. I want to publicly thank all of my friends that have asked about him, called me, and sent texts checking on how he doing. We learned a great deal yesterday, and I truly feel as if we are on the right track...finally!
The wonderful GI doctor spent one and a half hours yesterday, sitting face to face with me, talking about Little Kian's eating difficulties. He listened and he HEARD. I think this may be the first time that a doctor, other than his super-fantastic pediatrician, has actually really listened to my concerns. As many of you know, Little Kian does not eat solid foods. He only drinks. We work hard every day to get 8 oz. of a beefed-up, super high calorie, Pediasure-like drink down him...360 calories to be exact. Then, when he sleeps at night, I set my alarm to wake up at 11:00 and 2:00 to try to get more Pediasure down him. Usually, he is so groggy that he takes it, but sometimes he doesn't...leaving him to consume only about 360 calories a day. I just worry about the little guy all of the time, and I haven't really seen a specialist (until yesterday) that has been able to construct a plan for improvement. Our last specialist called him a "success story" simply because we have avoided a feeding tube. Ugh.
Now however, we have a plan. Kian has been experiencing some oral sensory issues. After lengthy discussion with the GI doctor yesterday, he believes we should have a thorough Occupational Therapy evaluation to try to discover if Kian's problems are related to his dislike of the way foods feel in his mouth. If the OT believes the sensory issues are minor, the doctor advised that he preform another scope to detect the increase/decrease of inflammation in his esophagus. On the other hand, if there are significant sensory concerns, he wants Kian to complete several weeks of OT sessions and then reevaluate our action plan based upon his improvement or lack of improvement. Our OT evaluation is Monday, and I am excited to get the ball rolling! Thank you all so much for your prayers this week!!! It means the world to us! Please continue to keep Little in your prayers. I was a bit scared/upset/crazy-frightened to learn that if Kian were to completely stop drinking the beefed-up formula, we would have to play on an entirely different ball field...It would be feeding tube time. (Insert crying-out-of-control-mommy-face here) We don't want that! So we shall continue setting the alarm for 11:00 and 2:00 and praying for the best!
Having a plan now has definitely been the highlight of the week. However, there are several other highlights worth mentioning!
1. School is out today!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
2. Big Daddy (my dad) has had a few great days lately. My sister was kind enough to stay with my dad so my mom could go with me and the rowdy kiddos to Cincinnati! I think she had a good time!
3. Granny took Cav and Airlie to the zoo while Little Kian and I went to the doctor. Cavan and Airlie got to pet turtles and snakes at the zoo, and they saw a baby gorilla named Gladys. They were VERY excited. Thank goodness Little was asleep when they were telling me all about their exciting day! He wouldn't have wanted to be left out.
4. We took a nice walk together on the riverfront. I love spending time together. My family is the icing on my cupcake, the sparkle in my diamond, the sunshine in my day...
|Cavan LOVED this fancy boat that was floating on the river.|
|Cavan is going to regret making silly faces in all of my pictures someday.|
|The sweetest little loves I know!|
Thanks again for your prayers! Love to you all!
Stacy, Stay-At-Home Mom for the Summer!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!