We were ecstatic, elated, and amazed to discover that our GI physician had "put a rush" on the biopsies so that we could have an in-person discussion about the medical component prior to leaving Cincinnati. As we all sat down to talk this morning, we were so happy to learn that Kian has GERD and not EE. His medicine appears to be keeping the inflammation at bay. There is evidence that his reflux was severe at one time, and that he is likely still having a minor amount of reflux. He has learned that eating isn't fun, and has decided not to do it. However, at this time, our doctor feels like we can avoid the feeding tube and attempt to reverse his feeding cycle! Yay for no feeding tube!!!
They explained that I have essentially functioned as his feeding tube for the last year. I have been waking up every couple of hours throughout the night and feeding him when he was too sleepy to realize what was happening. Our plan is to attempt to reverse his eating cycle and (with the use of medicine) force him to be hungry during waking hours. I have only seen him hungry one time in his life, so this should be a challenge. However, I am willing to do/try anything! We have a well detailed plan that I cannot wait to share with our PHENOMENAL preschool teachers and our SUPER FANTASTIC Speech Language Pathologist, Mrs. Jan. I am so honored to have people in our lives that pray for Little Kian and love on him every day. He is truly a loveable, happy child, and I really am praying for a positive outcome!
As for the feeding therapy, the Hot Pepper gobbled down the Nutrigrain bar while simultaneously snubbing the muffin, homemade milkshake they crafted just for him, and the strawberries. We have one more day to try to earn the cool wind-up turtle from the prize box...
You know, I will take GERD (or EE for that matter) any day. We have seen so many terribly ill children at CCMC and it makes me so sad that families must face illnesses/diseases that are not curable. I am thankful that my baby has this, and I hope that God will use this illness and our devotion to our baby for His glory.
People have been so kind to call, send texts, read all of my crazy blog ramblings, and do kind things for my babysitters (a.k.a. Granny and Big Daddy). Granny, Big Daddy, Cavan, and Airlie have had meals brought to them EVERY NIGHT since we have been gone. How nice is that!!! Airlie appreciates food more than anyone realizes, so I am sure she has been in heaven!
We completed our day with a fun trip to the zoo!
|Just for public record, Kian did not tear the ear off of the rhino at the Cincinnati Zoo. He is rough, but we didn't do it!|
|Kian wanted no part of petting the camel, but didn't mind if daddy did.|
|We rode the carousel and Kian did not like it...at all! It made a crazy noise...like it needed WD40 or something. That's my expert opinion on their carousel problem...ha ha|
|Daddy's feet were tired so we took a train ride.|